Data Matters

Data Matters
Author :
Publisher : National Academies Press
Total Pages : 103
Release :
ISBN-10 : 9780309482479
ISBN-13 : 030948247X
Rating : 4/5 (47X Downloads)

Book Synopsis Data Matters by : National Academies of Sciences, Engineering, and Medicine

Download or read book Data Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-01-28 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training. International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated dataâ€"this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well. A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domainsâ€"all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.


Data Matters Related Books

Data Matters
Language: en
Pages: 103
Authors: National Academies of Sciences, Engineering, and Medicine
Categories: Science
Type: BOOK - Published: 2019-01-28 - Publisher: National Academies Press

DOWNLOAD EBOOK

In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at
International Ethical Guidelines for Biomedical Research Involving Human Subjects
Language: en
Pages: 116
Authors: Council for International Organizations of Medical Sciences
Categories: Bioethics
Type: BOOK - Published: 2002 - Publisher: World Health Organization

DOWNLOAD EBOOK

The present text is the revised/updated version of the CIOMS International Ethical Guidelines for Biomedical Research Involving Human Subjects. It consists of 2
The Belmont Report
Language: en
Pages: 614
Authors: United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research
Categories: Ethics, Medical
Type: BOOK - Published: 1978 - Publisher:

DOWNLOAD EBOOK

The Ethics of Research with Human Subjects
Language: en
Pages: 320
Authors: David B. Resnik
Categories: Philosophy
Type: BOOK - Published: 2018-01-09 - Publisher: Springer

DOWNLOAD EBOOK

This book provides a framework for approaching ethical and policy dilemmas in research with human subjects from the perspective of trust. It explains how trust
The Immortal Life of Henrietta Lacks
Language: en
Pages: 386
Authors: Rebecca Skloot
Categories: Science
Type: BOOK - Published: 2010-02-02 - Publisher: Crown

DOWNLOAD EBOOK

#1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Ente